I’m nervous to put this out there:
I have an autoimmune disease.
I’ve written about it before, but not in about a year. I’ve had symptoms that match lupus and rheumetoid arthritis, but conflicting blood work. My current diagnosis is: atypical rheumatic disorder.
It costs about $600 to be told that. It means nothing.
I have tried acupuncture, massage, cupping, diets, fasting, exercise, medicine, salt-water soaks, prayer and willpower to rid myself of my symptoms. It is hard to know what works, because the nature of autoimmune diseases is that they flare and remit. That means if I make a change and feel better, the change might have made a difference or it might just be a time in between flares. Needless to say that makes it extremely frustrating to endure and difficult to treat.
For a while I thought I had it under control. I loosely followed an anti-inflammatory diet and had strong exercise and sleep routines. Regular salt-water soaks reduced my pain significantly. At the end of last summer, a flare burst in my body and I never fully recovered. For me flares mean chronic pain, exhaustion and pronounced arthritic symptoms. My body feels heavy, like all the trace metals in it are suddenly magnetized and pulling me down towards the Earth’s core. It is hard to find motivation to do anything more than the absolute necessary work of each day.
I haven’t felt like myself in nine months.
I haven’t felt good in nine months.
Not even for a moment.
Recently, a new symptom popped up: a topical allergic reaction to nightshade vegetables. Nightshade vegetables are a class of vegetables which contain a compound called solanine, which triggers inflammation in many people. The most common nightshades are eggplant, potatoes, ground cherries, peppers and most regrettably, tomatoes. There is a strong link between arthritis and nightshades. I gave them up for a short period last year, but didn’t notice a change, so I added them back. This last week, my hands have blistered, calloused and cracked just by touching them. Even after touching them for one minute and washing my hands with soap, they continued to sting for an hour afterwards. The flare that never quite ended started at the end of summer, also known as, tomato season.
If nightshades cause this strong a reaction to the briefest contact with my skin, what might they be doing inside my body?
I’ve done a bit more research and I learned that it takes one to four months without nightshades to notice a difference. I did not eliminate them for that long before and I wasn’t careful about hidden sources, so it’s worth a shot. As a foodie, the thought of life without tomatoes breaks my heart. As a person with an autoimmune disease, the thought of life without pain elates my spirit.
I live on baited breath.
I am about to embark on a detox program in hopes that I will come out of it healed. I will begin with a juice fast, followed by a raw food diet with a slow integration of other anti-inflammatory foods. I will compliment this with daily cardio and a detoxifying yoga routine. Salt has been extremely effective for pain relief, so I will use it daily as well as massage.
In the past I shared a weightloss diary with my readers, but I ended up feeling stressed about not getting my desired results, especially when flares interfered with my ability to push myself. I hesitate to broadcast any diet or self-improvement plan, because I don’t want to repeat that experience. But this is the truth of my life. I have not been able to follow through with many ideas I have for mamaguru.com because of this pain. I also know that autoimmune disorders are on a rapid rise and those of us suffering from them need answers and support. I hope this detox ends with a healthier, happier me, but if it does not, that’s valuable information too.
I have one more tomato-based recipe to share later next week, but then it’s back to the kitchen to get my creative juices flowing. I hope to learn some fabulous new recipes and cooking techniques as I wean my cuisine from tomato dependence. As daunting as this detox seems, I’m also exhilarated by the motivation to broaden my cooking skills and the fingers-crossed hope that I just may wind up healing myself.
Please wish me luck, keep me in prayers and send wonderful recipes my way. I’ll update you about my progress periodically.
Namaste,
Rebecca
Karen Tyler says
Thank you for sharing your journey through life with me….one of my KHT students taking the teacher training course directed me to your site! I love it when what I believe in with all my heart continues to show proof to me that I “am enough!” I am always given the right person, right book, right experience, etc. at the right time. You happen to come across my path when I really needed it! Sometimes those that live with a chronic pain condition (over 25 years now) and have other diseases (like Celia Sprue) feel isolated for we do spend a lot of time with our bodies due to not being able to “play” with others as often as we would love to. I have learned over the years that I have pain, I have a disease, but I choose not to suffer. Your story is like wind beneath my wings and I am very grateful! Blessings and Hugs, Karen in Indianapolis
Rebecca says
Hi Stacey. Thank you for sharing. I’m glad you are feeling better. I am too. By changing my lifestyle (lots of veggies, little sugar, regular cardio, great sleep) and cultivating a deep spiritual practice, I have managed to crawl out of my pain.
Stacey says
Hi Rebeccca,
Please go to Digestacure.com and check out what they have to say. I have MS and adrenal problems and I accidentally found their website. It’s a little pricey but well worth it. I had been in extreme pain in my adrenals for 11 months, and have no doubt my adrenals were being attacked by my immune system. No doctor would help me. I started taking Digestacure and within a week the pain was gone, never to return. It’s also helped the MS too. It’s all natural and absolutely no side effects.
Good luck!